These photos were taken tonight Mon 18th June. The first shot is Max and the second Blake.
Another day on the right track! Both boys seem to be doing well (although Blake is charging ahead with his feed tolerance issues at the moment and leaving his brother behind a bit!)
Blake is now on 12ml/hr continuous milk feeds which is almost a full feed (should be 13 and a bit!) so today they decided to leave his TPN drip off! YIPPEE!! No more nasty horrible drip hanging out of his poor little bruised hands and feet :) It's such a small thing but a huge achievement for him (and us!) The Dr explained that now they need to get him to a full feed amount and leave him there for about 48 hours and then once that is stable they will start to slowly switch him to feeds every 2 hours rather than continuous and see if his tummy can tolerate that. Once we are at that point we are looking at real progress!!
Blake's weight today was 2072g so down 12g from yesterday but I don't think that's an issue really.
Max is still not doing so well with his feeds. They have upped it to 3ml per hour continuous even though they are still getting large aspirates back. The idea is that they keep pushing on a little bit in the hopes that he will just kick into action eventually and start digesting it. He needs to have some in his belly in order to learn to digest it but not so much as it causes him a problem.
Max's weight today was 2042g, up 42g since yesterday. He still has his TPN drip, that will stay until he gets up around the full feed amount too.
Both boys had their hearing tests today which they passed without an issue. They also had the head ultrasounds and according to the Dr, the bright patches are still present on both scans in the white matter of the brain but weather that has a consequence we are yet to see! They will repeat scans periodically and keep an eye on it but at the moment it is pretty inconclusive and there are no real answers about what (if anything) that might mean for the future. We have been reassured that there is still every chance that it might just dissappear still - fingers crossed!
3 comments:
thank you
thank you
thank you marnie, for posting the photos of your little guys.
their sweet little faces don't show the struggles they have been through.
they are just beautiful.
here's many prayers and good vibes for their continued progress in the right direction.
bless you all xxoo
YEAH Marnie that is all excellent news. And how gorgeous are those little guys - you think they are both a handful now just wait until they are both bringing girls home LOL.
Keep your spirits up - great to see their progress.
Love Maursie xo
I know its annoying when people say what your baby's look like, but I think they look like Kim's kids, they are so gorgeous !! Their little cheeks are filled out and they look absolutely beautiful.
Congratulations !! Another milestone passed, it isnt easy for you but you are doing a sensational job.
love Jules
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